Books, Links & DVD's to get

If you buy nothing else buy this - fantastic video for training

Books on 80 topics with pictures to explore lots of issues

Great Book

with people with a Learning Disability - really marvellous. I highly recommend this!

Great resources and further training. Email Karen - she is a greatly respected expert in this field.

Diana Kerr

Also available in Dutch, Chinese and Norwegian

 

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Good general read with loads of coping ideas and real life people examples

Very interesting

Diana Kerr

British Psychological Society / Royal College of Psychiatrists (2009) Dementia and People with Learning Disabilities. Guidance on the assessment, diagnosis, treatment and support of people with learning disabilities who develop dementia. British Psychological Society: Leicester.

Buijssen, H. (2005) The Simplicity of Dementia. London: Jessica Kingsley

Carter, G. & Jancar, J. (1983). Mortality in the mentally handicapped: a 50 year survey at the Stoke Park group of

hospitals (1930-1980). Journal of Mental Deficiency Research, 27, 143-156.

Cooper, S.A. (1997a). High prevalence of dementia among people with learning disabilities not attributable to Down’s syndrome. Psychological Medicine, 27, 609-616.

Cooper, S.A. (1997b). A population-based health survey of maladaptive behaviours associated with dementia in elderly people with learning disabilities. Journal of Intellectual Disability Research, 41, 481-487.

Cooper, S.A. (1997c). Deficient health and social services for elderly people with learning disabilities. Journal of Intellectual Disability Research, 41, 331-338.

Dawson p ( 1998 ) cognitively impaired residents receive less pain medication than non- cognitivley impaired residents’ perspectives vol 22 no 4 pp 16-17

Dodd, K., Kerr, D. & Fern, S. (2006) Down’s Syndrome and Dementia Workbook for Carers. Teddington: Down’s Syndrome Association

Dodd, K., Turk. V., & Christmas, M. (2009) Resource Pack for carers of adults with Down’s Syndrome and dementia. Kidderminster: BILD Publications

Dodd, K., Turk, V. & Christmas, M. (2005) The Journey of Life: a booklet about how people change from babies to older people. Kidderminster: BILD Publications

Dodd, K., Turk, V. & Christmas, M. (2005) Booklet for Friends of People with Down’s Syndrome and Dementia. Kidderminster: BILD Publications

Dodd, K., Turk, V. & Christmas, M. (2005) Understanding Dementia - information for people with learning disabilities. Kidderminster: BILD Publications

Fray M (2000) Caring for Kathleen. Kidderminster: BILD Publications

Horgas A and Tsai P (1998) ‘analgesic drug prescription and use in cognitively impaired nursing home residents’ nursing research Vol 47 no 4 p 235

Janicki MP & Dalton AJ (1999a) Dementia, Aging and Intellectual Disabilities: A handbook. Philadelphia: Brunner/Mazel.

Janicki MP & Dalton AJ (1999b) Dementia and public policy considerations. In: MP Janicki and AJ Dalton (Eds) Dementia, Aging and Intellectual Disabilities: A handbook. New York: Taylor and Francis.

Janicki MP, Dalton AJ, Henderson M & Davidson PW (1999) Mortality and morbidity among older adults with intellectual disabilities: health services considerations. Disability and Rehabilitation. 21 284–294.

Janicki, M.P., McCallion, P., & Dalton, A.J. Supporting People with Dementia in Community Settings In M.P. Janicki & A.F. Ansello (Eds.), Community Supports for Aging Adults with Lifelong Disabilities. pp. 387-413 Baltimore, Maryland: Paul H. Brookes Publishing (2000)

Abstract: Due to the "greying” of the nation’s population, dementia associated with Alzheimer’s disease and other causes, has become another challenge for providers of services to adults with intellectual disabilities. In this book chapter, the authors explore the factors, policies, and support structures that can help agencies provide continued "aging-in-place” dementia-capable care, develop "in- place progression” dementia specific programs, or chose alternative care settings. It also explores some features of dementia-related behaviors that may need to be taken into account in program design and makes suggestions for staff training and planning for dementia programs.

Kerr D (1997) Down’s Syndrome and Dementia: A Practitioner’s guide. Birmingham: Venture Press

Kerr D (2007) Understanding Learning Disability and Dementia Effective Interventions. Jessica Kingsley, London.

Kerr, D. & Wilkinson, H. (2005) In the Know. Implementing Good Practice. Brighton: Pavilion Publishing

Kerr D, Wilkinson H and Cunningham C (2006). Responding to the pain experiences of people with a learning difficulty and dementia. Joseph Rowntree Foundation.

Main C. And Spanswick C.2000. Pain management. An interdisciplinary approach. Edinburgh: Churchill Livingstone

Morrison R and Sui AL ( 2000)’ A comparison of pain and its treatment in advanced dementia and the cognitively intact patients with hip fracture’ journal of pain and symptom management Vol 19 no 4 pp 240 –8

Prasher V ( 1995)Age- Specific prevalence;Thyroid Dysfunction and depressive Symptomology in Adults with Down’s syndrome and dementia. International Journal of geriatric psychiatry 10,25-31

Tsai, p and Chang J (2004) ‘assessment of pain in elders with dementia’ Medsurg nursing Vol 13, no 6 pp364-90